12-10-2015 10:38 PM
12-10-2015 10:38 PM
12-10-2015 11:19 PM
12-10-2015 11:19 PM
Thank you all so much on here for being supportive. It makes an enormous difference to me.
18-10-2015 12:26 PM
18-10-2015 12:26 PM
I woke up in a lot of back pain, and he was into one of his bad days. I can tell within a few minutes of waking. So he just kept going and I lost it.He got bored with it. He always does. He says he knows he's the problem, but he sounds and behaves like he's proud of that. He says I go on at him. He's right but only to a degree. I just give in to most of it, but I refuse to let him push over my boundaries every single time, especially the hygiene. That's what tipped me over this morning, again. He says he cares, but I asked (again) how can I possibly see what he thinks is caring, when he doesn't do a single thing that shows it. Then he started on his "believe me" phrase repetition which didn't help. I don't believe him. He's a compuslive liar. He will lie outright and thinks it's funny if I call him on it, or just not bother to take the time to think of the answer to something.
I said he can say what he likes, but words without actions have no meaning. He says he's trying, but I shouldn't expect to see anything that proves that. Then he started on the exact same phrase, with the exact same mannerisms as my mother (who is a psychopath and is the reason I suffer PTSD). And I told him this time he must have studied her very hard to learn that, when he can't learn anything I ask him to change. I feel like I'm at the edge of the slippery slope again and he's just standing there, pushing and pushing and pushing and he won't ever stop.
I created some analogies. It's like I had a beautiful, rare piece of china (my life) and it got knocked down and shattered into a hundred pieces. I don't even know if I found all the pieces, but I try to put it back together again. When I join a few pieces together, he comes along and drops it again. He says he'll leave, and I wish it were that simple, but that still leave me with a broken plate.
Tomorrow he won't remember or care how distressed I was today. And the physical pain just isn't going anywhere either. The last doctor shrugged his shoulders when I asked what to do - in a long line of doctors who don't do anything and tell me it's bad luck or bad genes. And the physical pain is being made worse by the stress and emotional trauma.
21-10-2015 07:46 PM
21-10-2015 07:46 PM
Today I got the afternoon alone with a friend. I even managed to drive to see her and she drove also, so we could meet half way. We will do this again in a fortnight, if he doesn't mess it up for me.
21-10-2015 08:10 PM
21-10-2015 08:10 PM
YOU DESERVE FRIENDSHIP
22-10-2015 12:28 AM
22-10-2015 12:28 AM
22-11-2015 09:11 PM
22-11-2015 09:11 PM
22-11-2015 10:51 PM
22-11-2015 10:51 PM
Its terrible and concerning that its often so hard to find help from medical practitioners.
Have you tried contacting Synapse to see if there is anything they could assist with?
https://synapse.org.au/media/71265/acquired_brain_injury_-_the_facts_-_forth_edition__2013_.pdf
23-11-2015 11:46 AM
23-11-2015 11:46 AM
@ivana Thankyou for the links!
I have read the PDF and found it very useful. I think hubby has every single thing mentioned.
I also believe the difficulty I'm having in getting help - other than hubby has little self awareness and refuses all assistance, is that his injury is caused by the medical profession. It seems to make them close shop to protect themselves instead of accepting they are the problem. The hospital covered up the whole thing and I don't have enough evidence, other than my husband, to prove what they did.
I will contact synapse when I get a few moments alone. I don't get many of those and I can't make those kind of calls when he's around. It makes him agressive and he'll do anything to distract a call, and he'll be intolerable for the rest of the day. And I just don't have enough personal resources left to cope with it.
I'm feeling a little better today (recovering from flu/bronchitis/asthma) and so he's not so abusive, because he doesn't have to keep up the pretence that he cares.
23-11-2015 01:10 PM
23-11-2015 01:10 PM
Its good that you can check in occasionally @artee ...
now that you have explained that fear of being sued is part of the medical profession's lack of support ... its important that you find an avenue or advocacy group to help you get the support you need ... @ivana has great awareness of the web and various govt and non-govt agencies.
If you need urgent assistance, see Need help now
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