I'm sorry to hear that Mr D is in such agony @Former-Member that is so upsetting and distressing for you. I am sure that there is a wide divide between the care received in Sydney/Melbourne/Brisbane and regional Aus. Even if you cant' access respite or in-home care I hope that you are being checked on via phone or online very regularly, its too much for one person. It sucks being limited with meds due to other health problems, I can relate to Mr D with that, its scary that there really aren't many options. At least the doctors are checking Qtc and are on top of that, some docs can pass you over as 'too young for that', or not meeting some other criteria, which happened to me, so regular eeg's are a good thing that aren't being dismissed as unnecessary.
Its a beautiful time of year, its still warm but the humidity has dropped and we're having the occasional fresh morning in soggy Sydney. I hope that you can sit in the garden somewhere with the puppers when Mr D is resting, or get some rest yourself, Corny 