Hi @scoz64 and welcome to the forums.  

I can understand and sympathise with you on what you are going through in caring for your husband with PD. 

I was full time carer for my husband until he passed away suddenly last year.  Among some life threatening illnesses, including stage 4 cancer, he suffered from Parkinsons Disease.  

PD is a disease which has so many unexpected, unknown and insidious side effects.  Most people have no idea,  unless they are living with it. 

I do hope the Neurologist is able to help,  but sadly there is little they can do with some of the side effects.  Most of the time its just a matter of ever increasing medications. 

You are so right in what you said .. it impacts the PD sufferers loved ones in a huge way.  I hope you have access to support.  Whether that be via loving family and friends or professional support. So important to look after yourself. 

Emelia 🌷